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It’s official – we now have a poster… #MakeWilliamWell #Cannabidiol #KetogenicDiet #YorkshireThreePeaksChallenge #Ependymoma

Background Those of you who are aware of our son William’s story will know how, after going through all treatment options available on the NHS, his brain tumour shrank by two thirds after we started him on Cannabidiol (CBD) and put him on a Ketogenic Diet – this was after doctors said he had only a… Continue reading Make William Well with Colas

As those of you who have been following William’s story will know, we believe it is either Cannabidiol and/ or the Ketogenic (low carbohydrate) Diet which gave rise to William’s brain tumour shrinking and his current state of health. What many people will not realize is just how difficult it is to do the Diet… Continue reading Ketogenic Diet Petition

Our MP has had a response from the Health Department (further to the Home Office response)… Unfortunately this response was also written before the announcement that cannabinoids will soon be eligible to be prescribed for patients with “exceptional clinical need”… and we are still none the wiser as to what exactly “exceptional clinical need” actually… Continue reading Health Department Response

We have received a response to our petition on behalf of the Home Office from the Minister of State for Policing and the Fire Service, Nick Hurd MP. Although the letter was supportive and included a personal note from the MP, it was mainly an outline of government policy which, by the time we received… Continue reading Home Office Response

This paper was presented recently at an international childhood brain tumour conference (ISPNO2018): “Lockwood G, Apte J, Ivanov D, Parr R, Walker DA, Storer LCS and Grundy RG (2018) TBIO-09. In vitro evaluation of the potential of glucose restriction as an adjuvant therapy for paediatric brain tumours. Neuro-Oncology 20 (Supplement 2) i82” It was presented… Continue reading More Ketogenic Diet & Childhood Brain Tumour Research

Great news about removal licence fees in this article but there’s a big question for me over the term “an exceptional clinical need”. Please help make sure the government don’t take their foot of the gas over this and sign our petition to make sure that childhood brain tumours aren’t left out! Let’s also hope… Continue reading Cannabis-derived medicinal products to be made available on prescription

So, after the government recently agreed consider licence applications for medicinal cannabis, we recently asked our consultant to apply for one so that William could be prescribed medical grade cannabinoids on the NHS (our current supply currently costs £2,000 for a nine month supply!) We then found out that such an application would cost the… Continue reading £3,655 for a Medicinal Cannabis Licence Application

A month after meeting our Member of Parliament, Alan Campbell @alancampbellmp we’ve had our first official response: “I am still waiting for responses from both the Health Secretary and the Home Secretary, as you know I have suggested to both that you are keen to meet.“ Not really the response we were hoping for although… Continue reading Response from Member of Parliament

I guess most people’s question about Cannabis and Cancer is if it’s effective then why is there so little evidence? Well, I came across this article earlier on today and they put across the following three reasons which I don’t think I could have written better myself: “First, its illegal status has thrown substantial bureaucratic… Continue reading Why So Little Quality Cannabis & Cancer Research?