Adrianne’s Run

It’s Adrianne’s run on Sunday where she’ll be raising money for the CBD Research Project at the Childhood Brain Tumour Research Centre. Please see https://www.justgiving.com/fundraising/adrianne-bailey

We’re so grateful for her support in raising funds and awareness. Our hope is that the more people are aware of our story, the more other children can benefit from what we’re going through.

#childhood #brain #tumour #ependymoma #makewilliamwell #altcr

Super William’s Stable Scan

It has been a year now since William’s tumour was found to have shrank by two thirds and we’re delighted to be able to report that his latest scan was found to be stable again!

In the three months since his last scan we have faced a couple of difficult issues…

The high tone hearing in his good ear was found to have been reduced to the point whereby he has had to be fitted with a hearing aid, and…

On two occasions he has been admitted to A&E with breathing difficulties which we thought might lead to the reintroduction of his tracheostomy.

Our wee man just keeps battling on through though, which gives us time to focus on trying to help others benefit from what we’ve been through – please visit http://www.altcr.org to see what we’re currently doing to try and help…

As always, likes, follows and shares are always appreciated – the more people who are aware of what we are doing, the more other children can benefit

#altcr #ependymoma #childhood #cancer

Our New Alternative Cancer Research Charity*

Conventional cancer treatments are effective in some cases. However, after all we have been through, we are more confident than ever about the potential of alternative cancer therapies

We are also all too well aware of:

a) how little funding is directed towards brain tumour research, in particular those affecting children

b) the shockingly disproportionate number of treatments available for adult as opposed to childhood cancers

c) how few treatments are available outside of chemotherapy, radiotherapy and surgery, each of which can cause significant harm

As such, we have decided to set up altCR (Alternative Cancer Research) with the aim of funding research into alternative therapies that show potential as being treatments for cancer

Since research into them is so significantly underfunded, the research projects we fund will primarily be focussed on childhood brain tumours

As part of Childhood Cancer Awareness Month we have chosen September to launch altCR – PLEASE Like, Follow and Share our Facebook Page and help spread awareness of our mission

#altCR #makewilliamwell #ependymoma

*we’re not a registered charity although as soon as we are eligible we will apply for charitable status