In early 2014 our son William was diagnosed with an Ependymoma – a rare form of brain tumour. Being told your child has cancer is utterly devastating in itself but we soon became painfully aware of the following statistics*:
More children and adults under 40 die of a brain tumour than from any other cancer
Brain tumours receive just 1% of the national spend on cancer research
Up to 40% of all cancers eventually spread to the brain
Brain tumours kill more children than leukaemia or any other cancer
This website was set up to raise awareness and to try to help find more effective treatment options for William and other children with his type of brain tumour.
We went through the full range of treatments available on the NHS (Surgery, Chemotherapy and Radiotherapy) but were told in early 2016 that William’s tumour appeared to be terminal and he would have just 6 months left to live.
Not willing to settle for just six months of life with our special little lad we put him on a Ketogenic Diet and a drug not available on the NHS…
Six months later, not only was William still alive – his tumour had shrunk by two-thirds!
After such a dramatic reduction we asked our Oncologist, and world-renowned authority on Childhood Brain Tumours at the Children’s Brain Tumour Research Centre (CBTRC) to consider writing a research proposal into the drug – Cannabidiol (CBD – a legal, non-psychoactive element of Cannabis) – see film below which documents our campaign. Click here for the CBTRC article on the research proposal.
To our delight the required £100,000 was raised and the research project started in early 2018
If you’re interested in helping enable further research into these approaches, please visit Alternative Cancer Research (altCR) which was born out of our experience with William and the realisation that there is an urgent need for more research into these approaches. There’s nothing that can be done to help William whilst his tumour is stable but by supporting altCR you can help make sure that not only will he have more options should the tumour start to grow again but you’ll also be helping other kids by funding research that will one day hopefully lead to clinical trials
*Statistics taken from Brain Tumour Research