About

In early 2014 our son William was diagnosed with an Ependymoma – a rare form of brain tumour. Being told your child has cancer is utterly devastating in itself but we soon became painfully aware of the following statistics*:

  • More children and adults under 40 die of a brain tumour than from any other cancer
  • Brain tumours receive just 1% of the national spend on cancer research
  • Up to 40% of all cancers eventually spread to the brain
  • Brain tumours kill more children than leukaemia or any other cancer

This website was set up to raise awareness and to try to help find more effective treatment options for William and other children with his type of brain tumour

We went through the full range of treatments available on the NHS (Surgery, Chemotherapy and Radiotherapy) but were told in early 2016 that William’s tumour appeared to be terminal and he would have just 6 months left to live

Not willing to settle for just six months of life with our special little lad we put him on a Ketogenic Diet and a drug not available on the NHS…

Six months later, not only was William still alive – his tumour had shrunk by two-thirds!

After such a dramatic reduction we asked our Oncologist, and world-renowned authority on Childhood Brain Tumours at the Children’s Brain Tumour Research Centre (CBTRC) to consider writing a research proposal into the drug – Cannabidiol (CBD – a legal, non-psychoactive element of Cannabis) – see film below which documents our campaign.  Click here for the CBTRC article on the research proposal

To our delight the required £100,000 was raised and the research project is due to start shortly

Please visit our pages on Cannabidiol and the Ketogenic Diet for more information

These are just two “alternative” therapies and there are many others out there, although we wouldn’t recommend doing anything without the advice of a medical professional.  Therapies such as these are often dismissed out of hand since they are not offered as official medical treatment options but if nothing else we hope that William’s story gives people the confidence to consider what else might be available

*Statistics taken from Brain Tumour Research