In early 2014 our son William was diagnosed with an Ependymoma – a rare form of brain tumour. Being told your child has cancer is utterly devastating in itself but we soon became painfully aware of the following statistics:William went through the full range of treatments available on the NHS (Surgery, Chemotherapy and Radiotherapy) but we were told in early 2016 that his tumour appeared to be terminal and he would have just a few months left to live.
Not willing to settle for just months of life with our special little lad we put him on a Ketogenic Diet and a drug not available on the NHS…
Six months later, not only was William still alive – his tumour had shrunk by two-thirds!
After such a dramatic reduction we asked our Oncologist, and world-renowned authority on Childhood Brain Tumours at the Children’s Brain Tumour Research Centre (CBTRC) to consider writing a research proposal into the drug – Cannabidiol (CBD – a legal, non-psychoactive element of Cannabis) – see film below which documents our campaign. Click here for the CBTRC article on the research proposal.
To our delight the required £100,000 was raised and the research project started in early 2018
We’re currently campaigning for medicinal cannabis to be made available to children with cancer – for more information and to help support our campaign, please click here.
We’re also fundraising for more research to be done into Cannabinoids and the Ketogenic Diet – for more information, please click here