Although not an exhaustive list, these are some of the websites/ organisations we have found invaluable…

Signs & Symptoms

Head Smart – the website, supported by TBTC and CBTRC which suggested William’s head tilt could be a sign of him having a tumour

Be Child Cancer Aware – another site giving advice on signs and symptoms


Macmillan – offer the day-to-day advice that is fundamental to the journey through Cancer

Clic Sargent – offer support to families who have children with cancer

Ketogenic Diet

Matthew’s Friends – give unique support in helping people embark on a the Diet

Astro Brain Tumour Fund – support research into the Diet