Ok, so donations are starting to come in at our JustGiving Team Page (thank you so much to everyone who has donated so far) and in just over two weeks time we’ll be setting off on our Hadrian’s Wall Challenge (fingers crossed for better weather than today!)
This year we’ve teamed up with The Brain Tumour Charity and just like in previous years we’re looking to raise money and awareness for a specific purpose.
Two years ago we wanted research into cannabidiol to be carried out on childhood brain tumours so that one day it could lead to clinical trials – that 18 month research project has now been completed!
Back then the prospect of a clinical trial seemed like a pipe dream although with:
- recent developments in the press and in law, and
- the increasing acceptance of adaptive clinical trials
we now believe that trials into cannabinoids could be imminent, especially given who we’ve decided to team up with…
I recently received a personal email from Sarah Lindsell – CEO of The Brain Tumour Charity and this one sentence, which still makes me very emotional, I believe, says all you need to know about why I am so confident that teaming up with them is the best way forward for William and kids like him:
“We are working in a system that is decades old and not fit for a different world. We have to change this, no matter how hard, for the sake of all those with this disease today and diagnosed tomorrow. I can promise you, we will not give up until we have“
Discussions with research institutions are happening now in relation to the setting up of adaptive clinincal trials into cannabinoids and gliomas although as usual there are numerous bureaucratic hurdles that need to be overcome and no doubt the intention will be to look into adult brain tumours first…
As I’ve mentioned in a previous post only three drugs have EVER been developed for childhood cancers, only one of which was for a childhood brain tumour compared to the dozens there have been for adults – this is because children are second thoughts in the drug development process and paediatric tumours are usually very different from their adult equivalents
Please help us change this and for once make children a priority by donating to one of our fundraising pages
I’d like to sign off in the same way Sarah does in her emails to me…
“A Cure Can’t Wait“
makewilliamwell.com 