Category: Blog

Until now we have not had the confidence to share the other treatment option we believe had a large, if not entire part, to play in William’s improvement.  Given the significant reduction in his tumour size, the team at Nottingham agreed to write a research proposal into the drug Given their interest we’d now like… Continue reading Cannabidiol

We have had so much support from so many people since William’s diagnosis and I’m sorry if anyone/ organisation feels we haven’t thanked them enough but I just wanted to post how grateful we are to the Newark Roundtable I have to admit to not knowing much about organisations such as these prior to being… Continue reading Local Support

Couldn’t have found better words myself (for the original post click here)… “Upon hearing the news of his son’s cancer diagnosis, my heart immediately went out to this man I have never met and likely never will. Obviously, I hurt for his entire family. But as a father who has also heard the dreaded words,… Continue reading The Regrettable Education of Michael Buble

Although we try to keep this blog as positive as possible, we just wanted to share this article. The family were so brave publicising this photo and the awareness it has spread will hopefully help others. Those who criticised the father could not even begin to understand, even for a moment, what it means to… Continue reading A True Face of Cancer

For most of us, what was probably the most physically demanding weekend of our lives ended yesterday morning in a car park in North Wales having climbed the highest mountains in England, Scotland and Wales. A big thank you to all those who, over the two just giving pages set up to for the event,… Continue reading Three Peaks Conquered

It has been a long time since William’s Uncle Michael first started planning this event – back when we were hopeful that the research centre would be able to produce a treatment option for William. Regardless of recent developments in William’s situation, in the same way we hope keeping this webpage going will somehow help… Continue reading Three Peaks Challenge

A very apt webpage can be viewed by clicking on the image below or by clicking here. Same goes for dads… 

As mentioned previously, we set up our JustGiving page to help fund research into Ependymoma – the type of tumour William was diagnosed with.  The proposal we are currently looking to support will hopefully come up with a treatment option for William – you can read the full research proposal at: Role of Epigenetic Modifiers in the… Continue reading Campaign Update

William finished his second week of chemotherapy this week. So far there have not been any significant side effects although, as we are well aware form past experience, it is early days. We decided to take him back to the Space Centre which proved again to be interesting enough for him to venture out of… Continue reading Chemo and Keto