Update

So, scan day came around again and there have been some changes, suffice it to say that I wish we’d realised an increase in his CBD dosage since starting two years ago might have been a good idea… scan again in two months. He’s doing really well in himself and we are really looking forward to Christmas!

#CannaKeto #MakeWilliamWell #Cannabis #Ependymoma #KetogenicDiet

10,000+ Signatures

A huge thank you to all those who have signed and shared our Medicinal Cannabis for Childhood Cancers petition and helped us get over the first magic number of 10,000 which means we can now get an official response from the Government, which is critical in the light of recent developments…

DESPITE A CHANGE IN GOVERNMENT POLICY, CANNABIS STILL WON’T BE PRESCRIBED TO TREAT CANCER

Our next goal is to reach 100,000 so that the petition can be considered for debate in parliament.

Given recent developments, we will now be asking for two main things:

  1. The prescription of medicinal cannabis for childhood cancer patients, as a minimum where standard treatments have failed (regardless of whether the threshold of clinical evidence has been met)
  2. With the advent of an Australian company commencing clinical trials on cannabis and adult brain tumours and the allocation of several million pounds towards research into brain tumours in the UK, we are asking for some of this money to go towards clinical trials into cannabis and childhood brain tumours

PLEASE SHARE OUR PETITION

We need to be pushing this campaign as hard as possible – please help

For more information and to keep up to date with developments, please follow our Facebook Page or click on the box below/ to the side to Follow This Blog.

10000

#CannaKeto #Cannabinoid #KetogenicDiet #Ependymoma #MakeWilliamWell

No NHS Medicinal Cannabis for Cancer Treatment…

Not that it’s entirely surprising but as it became legal yesterday for cannabis to be prescribed for medicinal use on the NHS, they produced this article, stating that it is only likely to be prescribed for:

  • children with rare, severe forms of epilepsy
  • adults with vomiting or nausea caused by chemotherapy

Even with this there are suggestions that only certain cannabinoids will be available for certain conditions – the Times produced this article today suggesting that in the case of Billy Caldwell, the boy whose case triggered the reform, he will still not be able to be prescribed tetrahydrocannabinol (THC) since there is “insufficient high quality or clinical evidence in humans to support the suggestion that THC increases the efficacy of anti-epileptic effect when used in combination with cannabidiol [CBD]“*

Clearly more needs to be done.  I am doing everything I can to make sure that others benefit from what we have been through with William and his brain tumour reduction after starting him on CBD and the Ketogenic Diet.

Please follow our progress by clicking the Follow box on this page or by Liking our Facebook Page, helping us spread the word further in our pursuit for wider access to medicinal cannabis, especially for childhood cancer patients.

Also, please consider signing and sharing our Petition – we’re so close to the magic number of 10,000.

Finally, please contact me with any experiences you have had with cannabis and cancer using makewilliamwell@gmail.com

NHS No

*quote from the British Paediatric Neurology Association

Ketogenic Diet to be Included…

So excited to be able to announce that the “Let’s Talk Cannabis…” event now includes the Ketogenic Diet so covers BOTH of the approaches we started using on William before his brain tumour shrank.

AND, the presenters include one person working on the research project we proposed and helped fund plus another who was instrumental in getting William on the diet – click here to read more about them…

The Facts About Cannabis and Cancer

With many mis-truths circulating about cannabis and cancer, this seminar, which features a doctor working in the cannabis research field, aims to spell out the facts.

I’ll also be talking about my son William’s Journey with cancer, cannabis and the ketogenic diet which isn’t just about another anecdotal story but what we’re doing to make sure that what we’ve been through can help others.

#CannaKeto #Cannabinoid #KetogenicDiet #Ependymoma #MakeWilliamWell #YestoLife

Do you want to hear about to William’s story?

I’ll be speaking at this event in Nottingham on Tuesday 20th November 2018 about William’s Journey.

Pretty nervous but as always I’m happy to have the opportunity to spread awareness of what William has been through in the hope that it will help him and others affected by this wicked disease.

Tickets for the event are available here – hopefully see some of you there…

Poster

#CannaKeto #Cannabinoid #KetogenicDiet #Ependymoma #MakeWilliamWell #YestoLife